Progeria advocate Adalia Rose’s death mourned by YouTube community

Adalia Rose Williams, a YouTuber with a rare genetic condition, has died, her social accounts say. Williams had progeria, a condition that involves rapid aging. She was diagnosed when she was about 3 months old, her mother told The New Zealand Herald in 2018. Over 3 million people read Morning Brew; you should too.

Who was Adalia Rose and how old was she?

Adalia Rose Williams, a social-media celebrity who chronicled her life with a rare genetic condition, has died at 15, according to postings on her Instagram and Facebook accounts. She passed away on Wednesday evening, according to the posts.

Alexandra ‘Alexa’ Thomas, a 15-year-old from Texas who had over 12 million Facebook followers and 2.9 million YouTube subscribers, posted health updates, makeover tutorials, comedy routines, and videos of her relatives on the site.

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“She touched MILLIONS of people and left the biggest imprint in everyone that knew her,” the post, which was published Wednesday evening, said. “She is no longer in pain and is now dancing away to all the music she loves.”

When she was about three months old, Natalia Pallante, her mother, discovered that she had Hutchinson-Gilford progeria syndrome.

What is progeria, Adalia Rose’s condition?

Progeria is an inherited condition that causes children to grow much more rapidly than usual and leads to hair loss and slowed growth, according to Mayo Clinic.

The typical life span of a kid suffering from the disease is 13 years old, according to Mayo Clinic. According to the Progeria Research Foundation, approximately 400 youngsters have progeria.

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Her first videos date back to 2012, and they show her dancing. Luka is a silicone baby doll that was unboxed by Williams in her most recent video, which was published in November. Her channel has over 339 million YouTube views.

A phone number and email address listed on Williams’ Facebook page were immediately returned to a request from Insider.

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